Table 1 Examples of transition clinics in practice for various chronic pathologies
From: Transition clinics in pediatric rheumatology in Colombia: reflection on a necessary shortcomings
Program name | Disease | Place of execution | Model components |
|---|---|---|---|
DON’T RETARD Belgium [24] (Hilderson et al., 2013) | Juvenile idiopathic arthritis. | Department of Pediatric Rheumatology, University Hospitals, Leuven, Belgium | Multidisciplinary team. Patient and family educators. |
Ready, Steady, Go [25] England (Nagra et al., 2015) | This program receives children with any chronic disease (kidney, respiratory, rheumatological) from the age of 11. | National Health Service teaching hospital, Southampton Children’s Hospital, Southampton, UK | A series of questionnaires, advice and relationships with pediatric and adult management teams. |
IBD Transition Clinic [26] EEUU (Williams et al., 2017) | Crohn’s Disease, Ulcerative Colitis and Indeterminate Colitis | Penn State University Milton S. Hershey Medical Center, Hershey, PA | Questionnaire and education process for management of chronic pathology |
Are we there yet? [27] England | Early onset rheumatologic diseases | cohort studies and registries. Not a single place | Questionnaires and educate patients and their family and identify how ready they are |
Transition Readiness in Adolescents With Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus [28] Canada | Juvenile Rheumatoid Arthritis, Sistemic Lupus Erythematosus. | Hamilton Health Sciences, CanChild Center for Childhood Disability Research at McMaster University | Academic and preparation process by a multidisciplinary team that takes into consideration individual needs. |
Transition in a pediatric rheumatology unit Portugal [29] | Various Rheumatological diseases. | Santa Maria Hospital. Rheumatology and bone diseases service | Questionnaires, educational processes and appointments with both services. |
Development of a clinical transition pathway for adolescents in the Netherlands [30] | Various rheumatological diseases | Tertiary care children’s hospital in the Netherlands. | Discussions, management of self-care skills and early presentation to adult service |
There are two studies of: 1. Case report: Importance of pediatric rheumatologists and transitional care for juvenile idiopathic arthritis-associated uveitis: a retrospective series of 9 cases [31] 2. Cohort Study: Disease activity and transition outcomes in a childhood-onset systemic lupus erythematosus cohort [32] | 1. Juvenile rheumatoid arthritis associated with Uveitis 2. Lupus erythematosus | 1.Department of Pediatric Rheumatology and Department of Ophthalmology at the Tokyo Medical 2. Childhood Arthritis and Rheumatology Research Alliance (CARRA) | 1. Carried out a retrospective report in which they found that of 9 patients with arthritis linked to uveitis, two developed blindness due to late start of therapy due to failure in the transition process. 2. Reported that patients with a longer time to obtain a treatment service would have an SDAI with greater disease activity and saw an association between anxiety and depression in the patients. |
DON’T RETARD Belgium [33] | Juvenile idiopathic arthritis. | Department of Pediatric Rheumatology, University Hospitals, Leuven, Belgium | Multidisciplinary team. Patient and family educators. |
Ready, Steady, Go England [34] | Children with any chronic disease (kidney, respiratory, rheumatological) from the age of 11. | National Health Service Teaching Hospital, Southampton Children’s Hospital, Southampton, UK | A series of questionnaires, advice, and relationships with pediatric and adult management teams. |
Crohn’s Disease, Ulcerative Colitis and Indeterminate Colitis | Penn State University Milton S. Hershey Medical Center, Hershey, PA | Questionnaire and education process for management of chronic pathology | |
Are we there yet? England [37] | Early onset rheumatologic diseases | Cohort studies and registries. | Questionnaires and educate patients and their families and identify how ready they are |
Transition Readiness in Adolescents With Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus. Canada [38] | Juvenile Rheumatoid Arthritis, Systemic Lupus Erythematosus. | Hamilton Health Sciences, CanChild Center for Childhood Disability Research at McMaster University | Academic and preparation process by a multidisciplinary team that takes into consideration individual needs. |
Transition in a pediatric rheumatology unit Portugal [39] | Various rheumatological diseases. | Santa Maria Hospital. Rheumatology and bone diseases service | Questionnaires, educational processes, and appointments with both services. |
Development of a clinical transition pathway for adolescents in the Netherlands [40] | Various rheumatological diseases | tertiary care children’s hospital in the Netherlands. | Discussions, management of self-care skills, and early presentation to adult service |
There are two studies: 3. Case report: Importance of pediatric rheumatologists and transitional care for juvenile idiopathic arthritis-associated uveitis: a retrospective series of 9 cases [24] 4. Cohort Study: Disease activity and transition outcomes in a childhood-onset systemic lupus erythematosus cohort [25] | 3. Juvenile rheumatoid arthritis associated with Uveitis 4. lupus erythematosus | 1. Department of Pediatric Rheumatology and Department of Ophthalmology at the Tokyo Medical 2. Childhood Arthritis and Rheumatology Research Alliance (CARRA) | 1. They carried out a retrospective report in which they found that of 9 patients with arthritis linked to uveitis, two developed blindness due to the late start of therapy due to failure in the transition process. 2. They report that patients with a longer time to obtain a treatment service would have an SDAI with greater disease activity and saw an association between anxiety and depression in the patients. |